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Information relating to the treatment and diagnosis of Acoustic Neuroma

              Recent Research (PubMed.gov)

     PubMed.gov has been called the “true liberator of medical knowledge in the National Library of Medicine [Bethesda, MD].” Virtually all published research articles from the thousands of professionally recognized and peer-reviewed journals are archived on this website. PubMed comes with a powerful search engine that will quickly identify by topic virtually all research reports.Resources

The NLM has zealously pursued the goal of making medical information free, open and easily tapped. Articles in the ANA/NJ newsletter are footnoted to encourage readers to take a look on their own at the important research reports about acoustic neuroma that are available in the medical journals. Simply go online to www.pubmed.gov and use the search engine there to call upthe abstracts of reports cited in the newsletter or in other materials you have read.  PubMed will also direct your attention to related reports. For some reports, PubMed will provide a link to a free full-text copy. Reading the full text of any research report is always to be preferred. Most times, however, PubMed will only provide links for ordering copies from reprint companies (at much too high a price, we think). Better would be to ask the Interlibrary Loan Service at your local library to order a copy of the report you wish to read in full. There may or may not be a small charge.

               Guidelines for the Future Treatment of Vestibular Schwannomas, Feb 2018 (www.cns.org/guidelines)

For any long-term endeavor, there comes a time to step back and review what’s been done, what’s working (or not), and make adjustments and shape plans for future efforts. Two major American medical associations, the Congress of Neurological Surgeons (CNS) and the American Association of Neurological Surgeons (AANS), have determined that this time has come for the diagnosis, management and treatment of vestibular schwannomas. The Joint Guidelines Committee of the associations states:

   “Although much information has been garnered from current large retrospective clinical data series, it appears we have maximized the information to be gained by simply increasing the numbers of patients treated in the same fashion and adding to the duration of follow-up.  A useful starting point to improving the current knowledgebase is to define the benchmarks of our current knowledge regarding VS management using evidence-based techniques in order to allow meaningful points of departure for future scientific and clinical research.”   READ MORE

               Clinical Practice Guideline: Tinnitus, 2014 (www.entnet.org)

 This important guideline was published as a 40-page supplement to the October 2014 issue of the medical journal Otolaryngology – Head and Neck Surgery, vol. 151. The first author of the guideline and chair of its 23-member development group is Dr. David E. Tunkel, Johns Hopkins Outpatient Center, Baltimore, MD. An abstract of the guideline and a ‘Plain Language Summary’ are provided, and there is an extensive 263-item bibliography of consulted books and articles. A free full-text copy is available at www.entnet.org    READ MORE 

           “Conversations in Tinnitus” (www.ata.org)

 This is a series of audio podcasts with accompanying transcripts provided by the American Tinnitus Association. They are hosted by John A, Coverstone and Dean Flyger, private practice audiologists in Minnesota and Texas, respectively. Each podcast focuses on current issues, research and treatment methods for people living with tinnitus. The series includes:

          Does Diet Play a Role in Tinnitus & Hearing Health? - (Dr Christopher Spankovich)                                   

          Habituation to Tinnitus Using Cognitive Behavior Therapy - (Dr Bruce Hubbard)                                   

          Mindfulness to Manage Tinnitus - (Jennifer Gans)                                    

         The Tinnitus Decision Aid: Implementing Tinnitus Treatment - (Dr Helen Pryce)                                    

          Benefits & Pitfalls of an Online Support Community - (Markka Vesala & Hazel Goldhart)

          Over-the-Counter Medications for Tinnitus Relief -  Dr Robert DiSogra)

 

 Links to Websites

Acoustic Neuroma Association  (National Organization)

            anausa.org

Acoustic Neuroma Association of Canada ( National Organization)
            anac.ca.com

Acoustic Neuroma Patient Archive  (Early Acoustic Neuroma Reports)
            anarchive.org
American Chronic Pain Association (Pain Support & Information)
            theacpa.org
American Hearing Research Foundation (Hearing & Balance Information)
            american-hearing.org

American Tinnitus Association (Education, Research & Support)
            ata.org
Association of Late-Deafened Adults, ALDA (Hearing Support Group )
            alda.org

British Acoustic Neuroma Association (UK Organization)
            bana-uk.com

Brain Science Foundation (Focus on non-cancerous brain tumors)


            brainsciencefoundation.org

BrainTrust (Brain Tumor Support Group)

            braintrust.org

BrainTumorFoundation

              braintumorfoundation.org

Central NJ Brain Tumor Support Group  (Brain Tumor Support Groups)
            njbt.org
Cochlear  (Baha and other Implant Hearing Solutions)
            cochlear.com
CyberKnife (Information, Videos, Resources)

             Cyberknife.com

Dana Brain Center (Understanding the brain)
            dana.org
Dizziness, Imbalance and Hearing Disorders (Basic information)
            dizziness-and-balance.com
Guide to Hearing Loss  (Hearing amplification devices )
             besthearinghealth.com

Gamma Knife  (University of Pittsburgh Gamma Knife Center)
            upmc.com     
Hearing Health Foundation (Research, HH magazine issues)
            hearinghealthfoundation.org

House Ear, CA (Resources and Information)
            houseclinic.com
Hearing Loss Association of America  (Information & assistance)
            hearingloss.org
Hearing Health  (Guide to hearing loss )
            besthearinghealth.com
MEDEL (Bonebridge and other Implant Hearing Solutions)

            medel.com

Medifocus Guidebook on Acoustic Neuroma  (Print guidebooks)
            medifocus.com

MedlinePlus (Health Info from the National Library of Medicine)

            medlineplus.gov

MayoClinic, MN  (Information and Resources)

            mayoclinic.com

National Brain Tumor Society  (Brain Tumor Information, research)
            braintumor.org
National Headache Foundation  (Headache information & research)
            headaches.org
nih National Institutes of Health (Basic Health Information)

            nih.gov

National Library of Medicine  (Medical journal research reports)
            pubmed.gov
National Organization of Rare Disorders  (Database, assistance)
            rarediseases.org
Vestibular Disorders Association, VEDA  ( Balance Disorders Information)

            vestibular.org